Dr. Rujuta B. Wilson, MD, from the University of California (UCLA) is leading the FOXP1 Syndrome: Understanding through Neurodevelopmental Deep Phenotyping to Support Clinical Trials Study (FOUND Study). The FOUND Study is seeking to fill important gaps in the knowledge about the neurodevelopmental features of FOXP1 syndrome.

You are eligible to participate in the study if you live in North America, and you have a child between the ages of 1 and 20 who has a diagnosis of FOXP1 Syndrome. All participants will undergo a baseline evaluation. This study is being conducted both in-person at University of California, Los Angeles and virtually. Study materials will be mailed, and assessments are administered via videoconferencing if traveling to Los Angeles is not feasible. As a part of the study, motor, language, behavioral, cognitive, and autism symptom assessments will be administered. A parent interview will also be conducted to gain further insight into your child’s medical history, behavior, and development.

You will receive $50.00 for participating, and you will be provided verbal and written feedback about your child’s development. If your child is between 1 to 10 years old, there is an opportunity to participate in a 6-month and 12-month follow-up. If your child is between 15 to 20 years old, there is an opportunity to participate in a 12-months follow-up. You will receive an additional $25.00 for each follow-up completed.